SHE HAS LISS

LOVE THIS GIRL  !!

                                             She is developing a personality and she
                                       lets you know when she does not like something.

                                        And she smiles so much when I talk to her.

                                           She loves to be outside and go bye-bye.

                 Little one usually get down to her level and hug, kiss or talk to her.
Our grand daughter calls her "KAKA" because she can't say bekah yet.
So when Rebekah coughs she says  " kaka ok, kaka, ok ?"

This blessing has really opened our eyes to what we thought we could not handle.
Had we known that she had Lissencephaly (honestly) we would of turned her
file down.
This roller coaster is slowing down. In a couple months she will have lived with us
 for the same amount of time that she lived in China. I am still amazed by her daily !!
I am always trying to be brave and pick her up with all the wires and tubes that end up
attached to her. Well the other night during her dinner feed she was fussing so I
picked her up and accidentally pulled her mic-key button out. Amazingly we stayed
calm and put a new one in ... :)
Because of her Lissencephaly she feeds by g-tube and it can get messy,
6 times a day,she has airway therapy at least 3 times a day, she has a nebulizer
at least 2 times a day,she takes seizure meds twice a day to which they say her
seizures will never be controlled. This leaves her very scheduled !!!!
Doctors, we see a Cardioligist, Neurologist, ENT, Pulmonary doctor, GI doctor,
Primary care doctor, Aerodigestive clinic, and a dentist.
All of which I was scared to death of  before bringing her into our family.

 " LIFE BEGINS WHEN YOU STEP OUT OF YOUR COMFORT ZONE"

Here I am God, ready to serve the least of theses again.