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Saturday, August 29, 2015

ROCKETS

Ha, Ha ..love summer clearance. These rockets cost $1.00 each




                           They were a pain to assemble. The double sided tape that
                   was included did not work to good so scotch tape to the rescue.


        Day 2 . grand daughter wanted to play also so Hrutuja shared .


Rebekah is getting use to her HI/LO chair and AFOs.
Keeping it real here.. Some day are very  overwhelming
I have finally admitted that I can't do it all with Rebekah
and she will start to have a RN come in to help with her
six feeds all her therapies and medications.
and she will be with her the 3 hours she is at Morrison Center.

The count down to school starting is on and I hear it everyday..
8 more days, 7 more days, 6 more days.etc.
Hrutuja will be going to Seacoast Christian School with Nathan this year..
Gabe and Rohana will attend Wells public School.
And Rebekah will be going to the Morrison Center.

These kids are pretty awesome !!



Monday, August 17, 2015

AFO

Another year zipped by our first adopted daughter
turned 8 today (home 5 years)


She was a little ovewhelmed at seeing her candles lit so i put
some frosting on her nose to ease the tention.

Today Rebekah had a recheck. She was in the hospital 8/1 - 8/3
we have an awesome pulmonary Doctor whom we are seeing
EVERY Friday. She now had vest therapy (airway) and an inhaler.
Feeds every 3 hours during the day and finally she does not need
oxygen as much !!!

AFO's for 3
                                   
                                             Gabriel...galaxy


                                               Rohana... foot balls, soccer balls,, etc

                                        
                                           Rebekah... lots of hearts
                                                yes, mom picked them for her.



                                 Rohana also has a wrist brace.

Rebekah's new high low chair.
Have I said "I am glad we have awesome health Insurance."


keeping me busy but still feeling BLESSED.

Tuesday, August 11, 2015

BIRTHDAYS

Our girls are both 7 for 12 days.
They both wanted remote control vechicles
so we got them jeeps and lots of batteries !!




usually we give Rohana her present at the same time because
she does not understand ..... SHE DOES NOT LIKE WAITING !!!
I will update after her birthday

Thursday, August 6, 2015

Re CHECK

Yesterday, I took Rebekah to her primary care physician to
get a recheck after leaving the hospital..
her weight is a little over 28lbs. and her oxygen level is
.........can't get the machine to work,  try another finger,
then the other hand and it slowly starts to climb
64, 65 up to 72... we go the toe one because she is really
small for 3 (?) So we start at 72 and stop at 80. I get this
ot, oh look from the nurse. She leaves to get the doctor.
I put Rebekah across my legs and she starts to droole down
my leg, she cleared her saliva the she gargles with.
When they came back in her o2 went up to 91.....
Doctor said " she needs oxygen so she can be readmitted to
MMC or oxygen at home.. so I chose oxygen at home.
GI doctor finally changed her feeds..


I AM POOPED !!

Sunday, August 2, 2015

AUGUST

ESY is over for Gabriel and Rohana.
We did not sign them up for the field trip
Because of anxiety for them and thank
goodness it was 90 degree outside.
I was a little upset with the school for not
telling us that school that day was not an
option since they were not going on the field
Trip. !#$
Friday, daddy got out of work early so we
Decided to start school shopping by going
to the mall. Even though Hrutuja's had
decided to have India food for her birthday
Meal, we still had to have India food at the
Mall.

Saturday was my nieces birthday party
And Austin was scheduled for testing for possibly
A new job.
Rebekah did not sleep good and she was having
A hard time breathing.  To urgent care we went.
2nd ambulance ride with our little girl.
We spent 6 hours in the ER, spiked fever, febrile
Seizures. Finally admitted @4 pm.
We will be here for a couple days.
We missed the birthday party / family gathering.
But daddy brought the kids to see us.